2752 - Design and Implementation of Survivorship Care Plans for Adolescents and Young Adults Diagnosed with Thyroid Malignancies
Presenter(s)
C. E. Hill-Kayser1, K. Camberari2, K. Okonak3, K. E. Arnold-Korzeinowski4, M. Iocolano5, A. E. Bauer6, D. Szalda7, L. Schwartz7, J. M. Metz5, and S. E. Mostoufi-Moab6; 1Department of Radiation Oncology, Hospital of the University of Pennsylvania, Philadelphia, PA, 2Childrens Hospital of Philadelphia, Philadelphia, PA, 3University of Pennsylvania, philadelphia, PA, 4University of Pennsylvania, PHILADELPHIA, PA, 5Department of Radiation Oncology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, 6Childrens Hospital of Philadelphia, PHILADELPHIA, PA, 7Children's Hospital of Philadelphia, Philadelphia, PA
Purpose/Objective(s): Survivors of rare malignancies, including thyroid cancer (TC), are at risk for low surveillance/ follow-up at the conclusion of active cancer care, yet many will face long-term health consequences of TC and its treatments;1 risks associated with transition to survivorship care are also heightened in the adolescent/ young adult population.2 A paucity of resources for survivor support and education exist for this population. The goal of this study was to evaluate feasibility of design and implementation of survivorship care plans (SCP) designed specifically for AYA survivors of TC.
Materials/Methods: We leveraged an existing tool for creation of SCP for AYA survivors, Smart-ALACC (Smart Adult Living After Childhood Cancer), to create a tool specifically designed for AYA survivors of TC. Smart-ALACC is part of Oncolink, a free, publicly available Internet resource designed and maintained by healthcare providers at the University of Pennsylvania (www.oncolink.org). It provides recommendations for survivorship and late-effects surveillance in response to entry of information specific to diagnosis and treatments received; all guidelines align with Children’s Oncology Group Long-Term Follow-Up Guidelines. TC-specific content was created by pediatric oncologists and endocrinologists. All procedures were approved by IRB and the project was supported by the Children’s Cancer Research Foundation.
Results:
Care plans include information on pediatric TC and genetic contributors, as well as long-term and late risks associated with thyroidectomy and/ or LN dissection, radiotherapy, radioactive iodine therapy (RAI), systemic therapies, and hyper/ hypothyroidism. Content also includes healthy living and age-appropriate screening recommendations. SCP can be created by survivors, healthcare providers, or family members; SCP creation requires < 5 min. 49 uses of this tool for AYA survivors of TC occurred from 2023-2025. Subjects had median age 17y (range 15-30y), and median age at diagnosis 15y (R11-20y). Most (78%, n=38) were described as female and white/ non-Hispanic (69%, n=34). Most common treatments received were partial or total thyroidectomy (51%, n=25), LN dissection (39%, n=19), and RAI (69%, n=34); 4 users reported EBRT (7%, n=4).Conclusion:
Development and implementation of a dedicated tool for AYA survivors of TC proved feasible; TC survivors receive multimodality treatments, including RAI, and are in need of disease and treatment-specific resources. Survivorship care plans represent an efficient method for provision of survivorship information and bridging care teams for survivors of this rare malignancy.- Konstantinidis A, et al. Risk prediction in children and adults less than 45 years old with papillary thyroid cancer. Expert Rev Endocrinol Metab. 2017.